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Epilepsy Society Photos & Videos on Instagram

@epilepsysociety See full size profile   UK charity working for a full life for everyone affected by epilepsy 💜 Helpline 01494 601 400 📞 Read about Amelia’s story below

3 days ago

Rose lives with a brain tumour, who she has called Brian @lifeofbrian2015 . In this video, she shares how finding her “inner brain tumour” in challenging situations has helped her to channel inner strength. Thank you for sharing with us, Rose 💜 @rosemarsbar “I hope that you guys would watch this and think back and think, like, “this is my figurative brain tumour, this is something, an experience or an event, that hurt me loads and it was really hard but I got through it in the end”. And then if things are hard now you can draw on that experience and sort of know that you'll get through it.” 💜 #epilepsywarrior #epilepsy #epilepsysupport #epilepsyawareness #mentalhealth #seizure #seizurefree #braintumour #braintumor

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1 week ago

Yesterday we asked our followers to share their #1 tip for coping with stress. Here we have selected 10 of the responses we received 😌 As epilepsy is so individual, it’s important to remember that not all of these tips will work for everyone. It’s best to find strategies that work for you and seek advice from your GP or neurologist if you have concerns 💜 #epilepsytip #epilepsy #epilepsysupport #epilepsyawareness #seizures #seizure #seizurefree #invisibledisability #stress #stressrelief #stressedout #stressmanagement

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2 weeks ago

Massive thanks to our 2019 RideLondon Team - you were all incredible! Feeling inspired? Join our 2020 team in this iconic event - sign up at epilepsysociety.org.uk/ridelondon-100 or /ridelondon-46 🚲 #ridelondon #fundraising #epilepsyawareness

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1 month ago

Amelia Roberts was beautiful, vivacious and just 21 when she tragically died from a fatal seizure just before Christmas in 2018. Her dad, Hamish found her in the bath. Amelia (pictured) died from sudden unexpected death in epilepsy (SUDEP). She was the middle daughter of Hamish and Debbie Roberts' three girls. Amelia developed epilepsy around her 16th birthday when she started experiencing absence seizures. She kept an avid record of her seizures as she began a journey with her family to tackle her condition. In five years Amelia had 830 absence seizures and in spite of trying various combinations of anti-epileptic drugs, also began to have tonic clonic seizures last March. She broke her jaw in July whilst having a seizure. Even though she only had 10 of these, the last one was fatal. Amelia found support from Epilepsy Society and was inspired by the research the charity carries out to understand more about epilepsy and how the condition can be better diagnosed and treated. She also benefited from the guidance of information produced to support people with epilepsy. With generosity and a big heart, Amelia signed up to donate her brain for research at the Epilepsy Society Brain and Tissue Bank where understanding more about SUDEP is a key focus. Nobody could have foreseen that her wish would be so quickly realised. Her parents could never have imagined that they would be the ones to ensure the wish of their daughter was carried out. Hamish said: "It was Amelia's wish that her brain would be used to help scientists discover more about the causes of epilepsy and how seizures can be better treated. Her tragic death may have been prevented if we had been able to control Amelia's seizures. It is too late for our daughter but as a family we are determined to make sure that other families are not swallowed up by the grief that has consumed us.” Learn more about Amelia’s story at epilepsysociety.org.uk 💜 #epilepsy #sudep #epilepsyawareness #epilepsysupport #epilepsyresearch #seizures #seizure

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1 month ago

This is fantastic news on #worldemojiday ! 💜 @bbcnews ‘Apple and Android have provided a look at a selection of the new designs on World Emoji Day, ahead of a full release in the autumn. The designs are meant to better represent disabled people. An Apple spokesman said: "Celebrating diversity in all its many forms is integral to Apple's values. "These new options help fill a significant gap in the emoji keyboard."’ #disability #disabilityawareness #invisibledisability #seizures #seizure #epilepsy #epilepsyawareness #epilepsysupport #epilepsywarrior

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1 month ago

Examining brain tissue is one of the most important ways to help us understand the causes of epilepsy and the impact of seizures on the brain. Which is why we are so grateful to all those who consent to donate their brains, at the end of their lives, to our Epilepsy Society Brain and Tissue Bank 🧠 One of our key areas of research is to investigate the mechanisms responsible for Sudden Unexpected Death in Epilepsy (SUDEP). This is a leading cause of premature death in epilepsy. By studying brain tissue samples we have been able to establish a potential link between SUDEP and a depression of the central respiratory system following a seizure, and a link between serotonin pathways and the risk of SUDEP. Serotonin transmits messages between nerve cells and is also thought to play a role in functions such as heart and respiratory rates. We have also studied neuroinflammation in SUDEP. Brain inflammation is thought to be significant in the excitability of neurones and the progress of epilepsy in the brain. Learn more about our research at epilepsysociety.org.uk/research Our helpline are open Mon & Tues 9-4pm and Weds 9-7.30pm on 01494 601 400 and offer information and emotional support. Picture 1: Hippocampal tissue is stained to highlight brain cells predominately in the grey matter (purple) and myelinated axons (covered by a myelin sheath) in the white matter (dark blue). The postmortem brain tissue was kindly donated by a person who had chronic epilepsy. Picture 2 (section): Inflammation in the epileptic brain. Microglial cells (fluourescent green patch in the centre of the slide) are seen in the brain tissue of people with epilepsy. Pictures 3&4: Fluorescent whole slide scans of the epileptic hippocampus. An advanced technique (RNAscope), is able to show gene expression at a cellular level, in this hippocampal tissue kindly donated by people who had undergone surgery as treatment for their epilepsy. #epilepsy #epilepsyresearch #research #medicalresearch #epilepsywarrior #epilepsysupport #epilepsyawareness #seizure #seizurefree #seizures #brain

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