seizuredisorder Photos & Videos

3 hours ago

www.hope4isaac.blogspot.com

21
13 hours ago

Helping your dog work through and handle stress is key to building confidence in your relationship. And you can’t help your dog work though stress if you consistently shield your dog from things that scare them. It’s OKAY to let your dog experience some stress! Just give them the coping skills to process it. —— Day 5 of our #100daysofdogtraining was a Home-Depot outing. Boo didn’t even bat an eye jumping into the showers and tubs, sitting on the wood piles, or holding downs in the kitchen displays (see our stories for those). But the moving carts that made loud noises when she got on them? Those definitely stressed her out. I could have just walked away (and there is a time and a place for that), but in this instance I knew she could work through it, so I made her handle it. I used a combination of leash pressure, food rewards, and extensive verbal praise to help her process this “scary” event. By the end she was getting on and off by herself. Did she love it? No, but now she knows she can handle it and that I won’t ask anything of her that she can’t work through. We’ll keep working around these carts until she happily jumps right on and let’s me push her around the store. This is great prep for rides at Disney! :)

34014
13 hours ago

I've had this for dinner two nights in a row. It's the weirdest combination: Quorn cocktail sausages, potato salad, ritz crackers, houmous and grapes. I don't know what possessed me to put this combination of food on a plate but it's bloody delicious. Topiramate has completely changed the type of food I want to eat. I don't really want chocolate anymore and I used to eat it at least twice a day. I want salty food but not necessarily of the junk food variety. And I've found myself not enjoying meat. Hence random meals like this one. #chronicmigraine #migraine #migraineur #invisibleillness #seizuredisorder #seizures #epilepsy #chronicillness #nospoons #notjustaheadache #topiramate #topamax

130
16 hours ago

Reason to do Keto, as a diabetic: I never realized how much of wearing flip-flops was being able to feel them on your feet. Because I don’t really have any feeling in my feet (thank you diabetic neuropathy) they kept coming off while I was trying to walk in them. . . . . . #ketosoidontdieahorribledeathfromdiabetes #ketotopreventamputationfromdiabetes #keto #ketoaf #ketogains #ketoon #noexerciseyet #hubbytoo #ketolife #ketocommunity #thewaysheeats #lowcarb #eatrealfood #weightloss #motivation #diabetes #dialysis #lupus #pcos #congestiveheartfailure #seizuredisorder #eyeinjectionsmonthly #endstagekidneyfailure #trusttheprocess #justkeepswimming

170
19 hours ago

She got it! She works so hard we make sure she gets to play hard too. And catch and fetch are two of her favorite things to do. My boyfriend daughter her to catch the ball, and she loved it! (But shes still down for plain old fetch anytime.)I couldn't enjoy life the way I've been able to with out my little nurse💙, that's not to say its been easy. Having a dog makes seeing family hard. We have a niece who's deathly allergic to dogs, so that's a no go for shelby. And while there are days I go it alone so I can visit they aren't as often because i need shelby to mitigate my disability. So when you see us out maybe think about all the things I gave up so that this dog could go with me. It's not a fun trip, shes working. #chronicallypretty #chronicillness #seizuredisorder #servicedog #shelbythewonderdog #PNES #pseudoseizures #lifewithchronicillness

30
1 day ago

253
1 day ago

Day 4 of our #100daysofdogtraining challenge included a lot of PA work for Boo! Which means a lot of long down stays and under commands. The nitty gritty truth of service dog work is that sometimes it can just be plain boring! We broke up these sessions with playing fetch and flirt pole in the park. We started the day with Boo working at the car dealership while our car was serviced. She startled once at the drills going off, but we worked around it and she settled nicely. Then we went to my husband’s chemistry class with him and she freaking rocked it! She tucked under the desk and fell asleep. 🙌🏻 we grabbed breakfast at a cafe and she ignored the food on the floor. Then lastly she held her down stay the entire time I got my hair done. The only flaw was she tried to eat a couple hair balls off of the floor 🤦🏼‍♀️ after a few leave it commands she finally left them alone. This was the longest she has ever worked PA and I’m really proud of her! I really wouldn’t change anything about our sessions today, other than tidying up her leave it command. Who knew she liked human hair so much? 😂

4137
1 day ago

Hannah’s VNS was turned on this week. It’s on a very low setting and will be titrated up every two weeks until reaching a therapeutic level. 🧠 We haven’t noticed any problems from the low setting so far. 🧠 She is having an issue with intermittent eye deviation (as seen in this pic) and equilibrium. When she’s experiencing this I can’t leave her alone because she’d fall. I have to walk with her wherever she wants to go. Considering I MIGHT be two inches taller it’s a precarious “dance” getting around. 🧠 She had a similar situation with her first surgery several years ago. We never did find out what was happening even after numerous physicians visits, a CT and 24 hour EEG monitoring. It’s frustrating not knowing exactly what is wrong and therefore not being able to fix it! Can I get an “Amen”? #specialneeds #vns #vagalnervestimulator #neurologicaldisorder #vagalnerve #disequilibrium #specialneedsparenting #tuberoussclerosiscomplex #tsc #tuberoussclerosisawareness #epilepsy #epilepsywarrior #epilepsyfighter #epilepsyawareness #specialneedschild #specialneedsfamily #specialneedsawareness #specialneedsparents #specialneedsmom #specialneedsmama #seizures #seizurewarrior #seizuredisorder #seizureawareness

2011
1 day ago

Hey everyone! Looking for thoughts, prayers, well-wishes, reposts...whatever you can do after you read this story: “I am humbly calling and seeking for your mercy and compassion to help my beloved daughter, Ezra Luneta. As a mother I love my daughter so much and I will do anything to save her life. My daughter, Ezra, suffered from a severe condition bacterial epilipticus meningitis. Since we live in Sagay, we are far away from the hospital and the first aid was too late when she had a convulsion. The 10 hours of seizure affected her brain. We did everything to save her. Baby Ezra is confined in the ICU for two weeks now. Unfortunately, she could not manage to breathe on her own. So with the prolonged support of the respirator, she developed fungal pneumonia and this led to another operation on her neck called tracheostomy. The doctors made a whole for her to breathe... Now she is recuperating and hopefully I pray to God that my daughter will survive because I cannot afford to lose her. I love her so much.” #epilepsywarrior #epilepsyawareness #epilepsy #seizures #seizuredisorder #sudep #chronicillness #invisibleillness

13741
1 day ago

Everyone act cool. I just dropped Addi Hooker off at her first junior high dance. A boy in Addi’s essential skills class asked her to go to the dance “as friends”. Their amazing special education teacher offered to chaperone. As you can see, she’s pretty excited. Moving Addi from the general education population was emotional. We were taking her off the diploma bound curriculum. And that felt like giving up. Giving up on a normal life. Giving up on the chance of healing. Giving up hope. Hope that someday Addi would go back to the Addi she was six years ago. Addi before the thousands of seizures. But now I see that we were accepting. Accepting our beautiful Addi for everything that she is. Accepting that she doesn’t fit into a box. Accepting that her means to thrive means letting go of our idea of normal. And when I see this face right here, I know without a doubt, she’s exactly where she needs to be. . . . #theaddimachine #sharemyshoes #epilepsyawareness #endepilepsy #fundacure #epilepsy #fighter #seizuredisorder #seizuressuck #purple #purpleribbon #purpleforepilepsy #AddiandJames #bilateralbandheterotopia #jrhigh #eighthgrader #dance #fridaynight #specialneeds #highneeds #specialneedsparent

73069
1 day ago

Anxiety, alot of it. This summer has been swoshing around and my head has not have had the time to catch up. So my anxiety is worse, more than in a long time. I'm feeling Sorry for people around me, I'm feeling sad about stuff I don't want to cry about and I feel useless when everybody else can work, and not me.. #funkamera #epilepsy #epilepsi #epilepsyawerness #ep #hiddendisabilities #disability #disabledgirl #disabilityawareness #seizuredisorder #seizure #funkisliv #seizureawareness #awerness #livingwithepilepsy #livmedepilepsi #livmedutmattning #hejjagärutmattad #anxiety #anxietyawareness #livingwithanxiety

231
1 day ago

Emotions are nothing to be ashamed of! Rant below, let out something you've been holding in, comment whatever you need to get off your chest. We hear you 💙 . (Art credit- @perpetual.stargazer ) . . Image description: digital art of a water bottle dumping water with the text "bottle your water, not your feelings!" . . . . . #disabled #chronicallyill #chronicillness #selfcare #mentalhealth #mentalillness #recovery #spoonie #pots #porque #fibro #fibromyalgia #eosinophilicesophagitis #autoimmunedisease #seizuredisorder #crohnsdisease #activism #activist #feminist #feminism #intersectionalfeminism

382
1 day ago

183
1 day ago

Happy #PURPLEFriday ! 💜. - *Everything you need will come to you at the perfect time. Keep going!* - Have a safe, great, and seizure-free weekend and many more days to come! AOE LOVES YOU!! 💜 - Support the “i Am ME” Campaign Visit: https://www.angelsofepilepsy.org/i-am-me-campaign #AngelsOfEpilepsy #MakeADonation #JoinOurCampaign #iAmME #campaign #EpilepsyEquity #EpilepsyOutreach #1in26 #SupportEpilepsyAwareness #Advocate4Epilepsy #EPILEPSYLIVESMATTER #seizures #epilepsy #Neurology #Neurologist #Neuro #NeuroDoctors #doctors #medical #Purple #SeizureDisorder #SaveLives #HelpSaveLives

441
1 day ago

We are so proud to preview this book which has been in the works for almost 3 years, much of it created on-site at the Epilepsy Awareness and Education Expos in 2017 and 2018. This beautiful, rich color, hardback book contains so many pages of personal stories as told by the patients, family members, and caregivers. Each story features amazing, introspective photos which compliment and tell the story as well as the written words. Please purchase a PRE-SALE copy to help with ongoing support of our cause.⁠ Thank you to everyone that participated in the amazing project and those that made it come to life 💜⁠ ⁠ #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney

481
1 day ago

Some words I just needed to share. This co-culture should have more support, and less "proving people wrong". We're a COMMUNITY! Let's act like one. . ImageDescription: (black text over a bubblegum pink background "You don't have to validate your symptoms when they impact your daily life. You shouldn't have to prove anything when your illness gets in the way plans and just because your symptoms are "invisible" does not mean they don't exist. If they wanted to stay home they would just be honest, and the fact that they feel comfortable enough to share about their illness and symptoms and how they are affecting their daily activities shows they have trust, and you should not be quick to say it's just an excuse. Trust me, we don't need an excuse and we probably want to spend time with you, we literally just can't sometimes"- deathbydyes) . . . #osteoarthritis #hipdysplasia #chronicallyill #chronicallyill #spoonie #pots #potsie #fibro #fibromyalgia #eds #ehlersdanlossyndrome #heds #tachycardia #seizuredisorder #endometriosis #pcos #hsd #crohnsdisease #ibs #dysautonomia #disabled #zebra #medicalzebra #undiagnosedbutstubborn #edrecovery #spoonsquad

6910
2 days ago

I had a seizure on Thanksgiving 2017 that brought my life to a grinding halt for about a year. It took 8 months for it to be diagnosed. There was nothing complicated about it. It just took that long for someone on medicaid to be able to get an appointment with a neurologist and get the proper test done. Once it was diagnosed it took months more to get the medication levels correct. During this time I wasn't allowed to drive. I was unconscious for 7-10min and it robbed me of my independence for a year. These are the diagnostic test results that finally confirmed what the ER Dr. had suspected from the start. The spikes in the brain waves are seizure activity in my left temporal lobe⚡🧠⚡ #seizure #seizures #seizuredisorder

40
2 days ago

Instagram has a tendency to be a "who's the sickest/most disabled" competition especially in the #chronicillness community. Here's a reminder that even though you aren't the most severe of all cases, YOU STILL DESERVE HELP. This applies doubly so to #eatingdisorderrecovery !!! 💜💜💜 . Art credit to sparrow . Image description: text- you may not be the worst but you still deserve help . . #edrecovery #eatingdisorder #chronicallyill #chronicallyill #spoonie #pots #potsie #fibro #fibromyalgia #eds #ehlersdanlossyndrome #heds #tachycardia #seizuredisorder #endometriosis #pcos #hsd #crohnsdisease #ibs #dysautonomia #disabled #zebra #medicalzebra #undiagnosedbutstubborn

432
2 days ago

Muskaan is an 11-year-old girl who loves to play on the swings, go in the water, and be outside. She lives with Alazami Syndrome, a rare genetic condition that also causes global developmental delay and a seizure disorder. She is non-verbal and requires care 24/7, meaning her parents rarely get a break. Maskaan’s seizures are the most difficult part of her illness, and even though she’s had three surgeries in the past to control them and takes 30 anti-seizure pills a day, she still has seizures about twice a week. Her longest seizure lasted two full hours. Muskaan has the brain development of a two-year-old, and she is frequently in appointments at the hospital. Her younger sister, Eknoor, sadly shares the same condition. A wish for Muskaan would mean she and her family get to experience a little relief from their ordinary struggles. Because she is non-verbal, her parents aren’t sure what her wish will be yet, but they want to find something that will bring her a great deal of joy. But first, she’s helping her #TIMBERMARTHeroesChallenge team, Team Design Roofing's Super Sharks, fundraise more than $10,000 for her wish! Come out to @Design_roofing 's Make A Splash fundraising tomorrow in Port Coquitlam to have fun while making a difference (check out link in Design Roofing's bio for more info). @timber_mart_canada #ChildrensWish #WishesWorkWonders #DesignRoofing #Fundraiser #AlazamiSyndrome #Epilepsy #SeizureDisorder

163
2 days ago

H E R B alist•. So as you all know, to help my seizures I am currently looking into alternative methods/therapies. I have been inactive on here this week as I have had a minor setback.. I have introduced herbs into my regime. Now I have previously tried CBD oil but found this ineffective and therefore discontinued taking it. The most recent herb I have started is called ‘circuta’ or more commonly know as: Water Hemlock💧 Now this herb has been prescribed to me by a herbologist and we decided we would try for one month. However within the first few hours of taking this I started to feel so spaced out and slightly delirious. Therefore this was removed straight away. Plus a seizure at the beginning of the week made me super nervous that I don’t want to provoke another..! However we do have to try these things otherwise we will never know! What I’m finding with this journey is obviously my body isn’t going to agree with all alternative therapies just as it doesn’t agree with medications but I am excited to try even more and further develop my knowledge of alternative therapies and epilepsy! Hope you all have a lovely seizure free weekend! ♥️

164
3 days ago

I’ve seen a new Instagram challenge floating around that I am such a fan of! It’s called the 100 day training challenge #100daysofdogtraining - Basically for 100 days you document just a bit of your training from that day to track your progress. Then you get to see how far you came in achieving your team goals! I want to challenge anyone who would like to join to jump right in! This challenge is perfect timing for our upcoming Disneyland trip later this year. —— Day 2 of our 100 day challenge (I’m counting yesterday😊) was Boo’s first time at a movie theater! We saw the Lion King and went with another awesome SD team. Boo did well! She stayed on her place mat the whole time and watched the movie 😂we had one moment of silliness where she got bored and wanted to play, but she quickly got corrected for it and settled back down. . —— Our goals over the next 100 days are to increase the distractions and duration of Boo’s PA training outings. I also would like to see her reliably tasking with DPT and fatigue alerts during high distraction situations. Here’s to the next 98 days of our training! Thanks for following along :)

55215
3 days ago

I had a very strange brain day today... Most days I feel quite dizzy and ‘tipsy’ is the best way I can explain it but today I felt full blown drunk 🥴 I get very anxious with days like these, especially when I get heart palpitations and headaches because I worry a seizure is coming, however, I have absolutely no clue if I have any form of aura or symptom I’m about to have a seizure... Any one else have no auras? And does anyone else get that ‘drunk’ feeling? . . . . . #epilepsy #epilepsyawareness #epileptic #epilepsywarrior #epilepsysupport #epilepsyfighter #seizures #seizuredisorder #seizurestrong #aura #chronicillness #chronicillnessawareness #chronicillnesswarrior #mybrainsucks

3714
3 days ago

We are so proud to preview this book which has been in the works for almost 3 years, much of it created on-site at the Epilepsy Awareness and Education Expos in 2017 and 2018. This beautiful, rich color, hardback book contains so many pages of personal stories as told by the patients, family members, and caregivers. Each story features amazing, introspective photos which compliment and tell the story as well as the written words. Please purchase a PRE-SALE copy to help with ongoing support of our cause.⁠ Thank you to everyone that participated in the amazing project and those that made it come to life 💜⁠ ⁠ #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney

280
3 days ago

I've been laying low for a while on this one: a diagnosis of #epilepsy now. Not exactly shocking. But not good news either. I'm taking lamictal & a #folicacid megadose (4mg daily). If we get #pregnant I'll be a #highriskpregnancy and I'm not sure how I feel about that. I'm highrisk anyhow because of #advancedmaternalage (eye roll). . . . #epilepsyawareness #TTCwithepilepsy #seizuredisorder #twomoms #2moms #lesbiansttc #lesbiansmakebabies #samesexfamily #samesexparents #rainbowfamily #ttc #TTCcommunity #TTCtribe #ttcbaby3 #ttcjourney #knowndonor #spermdonor #POAS #LGBT #lesbian #waitingonbaby #lgbtfamily

195
4 days ago

I feel this way. I’m waiting for my time to win. In the meantime, I continue to live the best way I can. Thank you to all my Family and friends who help.

256
4 days ago

Day 1 of our #100daysofdoftraining - The ultimate trust exercise... glass floors! Today we trained at the natural history museum. Boo did really well! She was a little freaked out by the glass floors at first, but we trained through it until she was comfortable and confident. . It’s time for us to up her public access stimulation in preparation for Disneyland this December! That means training field trips to the zoo, theaters, aquarium, and local amusement park. I love my happy girl! 💗

1.4k59
4 days ago

In January of this year Jasmin and her #WarriorBaby Kinsley came to us, shortly after Kinsley had been diagnosed with #InfantileSpasms. We urgently connected them with Dr. John Millichap from @Luriechildrens , where Kinsley received the necessary medical attention no less than 5 hours later. This is how we all need to react to #IS - as a medical emergency that needs immediate treatment by a qualified and skilled Epileptologist. Several days ago, our Visionary & Founder Kristie Griess met with the family. This sweet #EpilepsyWarrior is #SeizureFree !! 🥳💜😄 What a blessing it is to do this work and experience first hand the results of quickly guiding families to a proper level of care, namely - a level 4 epilepsy center for diagnosis and treatment.

12211
4 days ago

On July 19, the U.S. Food and Drug Administration approved multiple applications for first generics of Lyrica (pregabalin) for the management of neuropathic pain associated with diabetic peripheral neuropathy, for the management of postherpetic neuralgia, as an adjunctive therapy for the treatment of partial onset seizures in patients 17 years of age and older, for the management of fibromyalgia, and for the management of neuropathic pain associated with spinal cord injury. #fibromyalgia #fibromyalgiaawareness #seizures #partialonsetseizure # #seizuredisorder #seizuressuck #health #medicine #pharmacist #pharmacy #pharmacynews #medical #physician #knowledge #medicalinformation #diabeticnueropathy #neuropathy #diabetes

70
4 days ago

I fully agree. I believe many things are not keto because my version of Keto is an attempt to not just lose weight, but to reduce inflammation in my body. I check ingredients as well as carb count because reducing inflammation response in my body greatly improves my overall health. . . . . . . #keto #ketoaf #ketogains #ketoon #noexerciseyet #hubbytoo #ketolife #ketocommunity #thewaysheeats #lowcarb #eatrealfood #weightloss #motivation #diabetes #dialysis #lupus #pcos #congestiveheartfailure #seizuredisorder #eyeinjectionsmonthly #endstagekidneyfailure #trusttheprocess #justkeepswimming

190
4 days ago

Before the sugar, corn and cereal manufacturers got involved in massive spending to change our diet in their favor, we knew what was bad for us... Even Barney Fife knew! https://youtu.be/ihOi56J17Hw . . . . . #keto #ketoaf #ketogains #ketoon #noexerciseyet #hubbytoo #ketolife #ketocommunity #thewaysheeats #lowcarb #eatrealfood #weightloss #motivation #diabetes #dialysis #lupus #pcos #congestiveheartfailure #seizuredisorder #eyeinjectionsmonthly #endstagekidneyfailure #trusttheprocess #justkeepswimming

80
5 days ago

Please join us for the 8th Annual Art Exhibit & Fundraiser. Newport Beach 100 Civic Center Drive

41
5 days ago

386
5 days ago

As you all know by now I'm a HUGE fan of @disney star @thecameronboyce. So to honor him, I'd like to share a little information about epilepsy. I, myself, wanted to learn a little more about the disorder that took our beloved Cameron so I figured others might like to as well. So over the next couple days my account will be dedicated to bringing awareness to #epilepsy. - #endthestigma #cameronboyce #honoringhislegacy #spreadawareness #mentalhealth #mentalhealthawareness #epilepsyawareness #seizuredisorder #seizures #stigmafree #bringingawarenesstoepilepsy #epilepsydisorder #publichealthproblem #cdc

100
5 days ago

161
5 days ago

Your unconditional love and support is what inspires us to assist children who suffer from seizures to get the higher level of care and life-saving diagnosis they need.⠀ .⠀ Say “Yes, please!” to helping families through the financial hardships of diagnosis and treatment of epilepsy.⠀ Donate Here: http://Bit.ly/DonateToMickiesMiracles .⠀ Help us continue the conversation about #PediatricEpilepsy. #MickiesMiracles

664
5 days ago

💜

172
5 days ago

We are so proud to preview this book which has been in the works for almost 3 years, much of it created on-site at the Epilepsy Awareness and Education Expos in 2017 and 2018. This beautiful, rich color, hardback book contains so many pages of personal stories as told by the patients, family members, and caregivers. Each story features amazing, introspective photos which compliment and tell the story as well as the written words. Please purchase a PRE-SALE copy to help with ongoing support of our cause.⁠ Thank you to everyone that participated in the amazing project and those that made it come to life 💜⁠ ⁠ ⁠ #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney

330
5 days ago

HADDIE BOO PETTING LUNA!!! WOW MOMENT!!! When I first connected with @little.brave_ I asked her mother about #rettsyndrome. I had never come across a child with Rett Syndrome, it is extremely rare although. Retts is on the autistic spectrum disorder. Her mother and I chatted for months. First Haddie was having constant seizures and made little eye contact. There were constant trips to the hospital. Thru sessions IVIG treatments she is drastically improved and now she is petting her dog!!! #haddieboo #rettsyndrome #rarediseaseawareness #seizuredisorder #epilepsy #ivig #newpuppy #maltese #specialchildren #specialneeds #miraclesfromheaven #therecanbemiracles #viralvideos #purposedriven #💜

366
5 days ago

"Some people sing about Deutsche girls And girls from California They might be alright for a night all right But don't trust them I warn you I've been to the east and I've been out west And I've been the world around But I ain't seen none come anywhere near A girl from London town" #toriamos #londongirl #5k #jog #jogging #cardio #CharityMiles #chubchange #doGoodfeelGood #doGoodbeGood #purposedrivenlife #beagoodhuman #vegetarian #epilepsy #epilepsyfoundation #seizures #seizuredisorder #onefootinfrontoftheother #stepbystep #milebymile #virtualrun #youtube #treadmill #sole #basementworkout #basementgym

100
5 days ago

This was such an in-depth nurse report, I had to share it. A few side notes: 1. She loves being a ‘blue nurse’. 2. When Jess refers to going to work, it means going to her aunt’s house. Jess does not have a job. 3. Her hair was much longer, and not cut in layers which causes it to be straighter. I’m trying to grow it back to this length. 4. Jess is very literal, so ‘talk to the camera’ was how I taught her to make videos with me.

1.1k85
5 days ago

Today this guy will begin a 5 day hospital stay for a video EEG 💜 An EEG is a non-invasive test that monitors & records electrical activity in the brain. We’re grateful that @childrensatl at Scottish Rite has a Epilepsy Floor/Unit. All of the Dr’s and nurses there are familiar with seizures and it makes for a more comfortable hospital stay. I’ll be there with him and hopefully we can play games and watch a lot of new movies to pass the time 💜💜 #EpilepsyAwareness

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