epileptic Photos & Videos

3 minutes ago

We are so proud to preview this book which has been in the works for almost 3 years, much of it created on-site at the Epilepsy Awareness and Education Expos in 2017 and 2018. This beautiful, rich color, hardback book contains so many pages of personal stories as told by the patients, family members, and caregivers. Each story features amazing, introspective photos which compliment and tell the story as well as the written words. Please purchase a PRE-SALE copy to help with ongoing support of our cause.⁠ Thank you to everyone that participated in the amazing project and those that made it come to life 💜⁠ ⁠ #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney

11
11 hours ago

Live in the Derby area? Meet other people living with epilepsy in a relaxed setting. Our Derby coffee and chat group meets on the last Sunday of every month 2.00pm-4.00pm at Hallmark Hotel Derby Midland, Midland Road, Derby.  This is an informal event where you can come along, meet other people with epilepsy and Epilepsy Action staff. We aim to bring together anyone affected by epilepsy to share their experiences and reduce isolation and provide a point of contact for people living in the Derby area. #epileptic #epilepsy #derby #eastmidlands #epilepsyawareness #epilepsywarriors #epilepsypositivity #epilepsysociety #epilepsyaction

10
15 hours ago

Finally time for my EEG (and apparently EKG too)! The last time I had an EEG was about 5-6 years ago. The last time I had a EKG was about 10 years ago. WOW! 😲Even though I felt sick today, my smile is so bright 😊😌 #timeflies #epileptic #whenyousmile

30
19 hours ago

Imagine being diagnosed with a condition like #Epilepsy where a fistful of pills becomes part of your daily life, and the pills that alter who you fundamentally are. Desperate for answers and I know the pills are not the answer as they aren't stopping the seizures and the side effects are a million times worse then the seizures themselves. Knowing this, I am left with one last series of options and that is surgical procedures on my brain. So between now and March 2020 I will be undergoing a series of surgical procedures to determine what surgery on my brain will be the best option to try put an end to my epilepsy. Am I terrified? Absolutely I am, but I cannot give up I have too much to lose , My son needs his father my wife needs her husband and I have too much and come to far to give up and wallow in self pity. . So this is how I am standing up and fighting back. Between now and Dec 31 2019 I am riding a total of 3200 miles ( the distance across the country) on my @assaultairbike to prove being an #Epileptic is not the end of the world. I will beat this! Please come track my progress Check out https://m.facebook.com/rocstopseizures/ . @charliefoundation @epilepsyfdn @1stphorm #iam1stphorm

153
20 hours ago

I just wanted to share a bit about my seizures. I am still undiagnosed, but battle 24/7 with tonic-clonic and absence seizures. My epilepsy started when I was 9 months old, where my parents identified I was starting into space, and becoming unresponsive. I had an EEG, but was clear, so the doctors kept telling me, one minute I was epileptic, the next I wasn't. However, they diagnosed me with absence seizures (Ikr, doesn't make sense!) When I was 13, I had my first tonic-clonic seizure. They started every few months. But now, more or less, every day. I'm still in a battle with a diagnosis. Just don't know what to do anymore! I smell burning before most of my seizures, and "fall back like a tree". I regularly bite my tongue, foam at the mouth and wet myself. But you know what, one day I'm gonna kick Epilepsy's butt, as it's the worse thing ever! Please share your story with me. Hope you're all okay. #epilepsy #chronicillness #seizures #depression #undiagnosed #exhaustion #roundincircles #frustration #wanttocry #epilepsywarrior #battle #winthisfight #hospital #disability #discriminated #hell #hope #epileptic #shareyourstory

53
20 hours ago

Some tunes~! Sorry I haven’t been posting as much lately, I’ve been busy with the hospital and prepping for my brain surgery! I’ll be sure to post as much as I can before my op on tues! Thanks for following~☮️ stay gifted and lifted my friends 🎶😎🍁=✌🏼❤️🖖🏼®️ | | | | | | | #highsociety #musician #music #guitar #guitarist #blueandgreen #milesdavis #jazz #studio #jjykim #highlife #thursday #tbt #artist #artistsoninstagram #weedstagram420 #lifted #unsignedartist #actor #film #model #photography #korean #fender #fenderstratocaster #mesaboogie #epilepsy #epileptic

136
1 day ago

Another one of our #SdExcerpts on #Sinuses : Having sinus issues my whole life/grandmother/mom/ me + seen as burdensome guilt- inducing hereditary family plague ..I've learnt it flares during emotional exhaustion -based anxiety+ being allergic to non-pro-self- choices+ spaces.. Temperature and light changes affect us.. Like an #epileptic attack on a much smaller scale.. Body and nerve system seizing(as in seizure) itself up to protect or lash-out(yell sneezing) at the bullshit( #emoceanal overload) that's happening.. Some ppl would never be loud if it wasn't for a raging sneeze (and the body requires all volumes of expression) Some ppl would never touch pressure points and massage their face( or reflexology finger/toe spots) if it wasn't for sinus ( #pressure ) headaches.. You're moving to a new altitude and atmospheric pressure with recent energetic shifts Growing wings and gills and oxygen-intake faculties and(facilities).. So I'd say it's the #manofleisure #ladyofleisure upgrade.. A #bloomingsensation Cleaning tip: using a damp cloth instead of broom-dusting helps us a lot🍃.. Diet tip: Zero diary or less or #treeoflife ( #stlucian name) tea or #blackpepertea as mucus-dissolving agent after use of mucus-inducing food..🍵 Muse: Processing #nervesystemmastery with @wallsofwellness #pleasurepressure Amplifier: This evident #venusinvirgo #marsinvirgo shift 🍃💜🐾🔊 #weknowtheway

56
1 day ago

Ever wondered what to do if someone has a seizure? I have epilepsy and I know that sometimes when I've had seizures it has been scary for onlookers who may not know what to do. Here's a quick guide from the epilepsy network. You do not always need to phone an ambulance, unless it's someone's first seizure, if they are having back to back seizures or if the seizure lasts longer than five minutes. #epilepsyawareness #seizure #seizures #epilepsy #whattodo #help #epileptic #dontbescared #geteducated #firstaid

23
1 day ago

A epilepsia é uma condição que atinge cerca de 1% da população mundial e é caracterizada pela presença de crises espontâneas e recorrentes. Aproximadamente 30% dos pacientes não respondem ao tratamento medicamentoso, segundo um artigo publicado no jornal de neurologia Brain. . Explorando esta condição durante seu doutorado em Ciências da Saúde, a pesquisadora da Ufal Heloísa Matos dedicou-se a investigar o comportamento dos genes para definir padrões nas crises epilépticas. A análise demonstrou alto impacto na área científica e social, e integrou uma série de apoios concedidos pela Fundação de Amparo à Pesquisa do Estado de Alagoas (Fapeal). . Os acadêmicos observaram que o pico de crises ocorre entre 14h e 17h, e que no intervalo da madrugada, das 4h às 5h, os animais quase não apresentaram crises. Este achado aceito para publicação no periódico Aging & Disease despertou a curiosidade de Heloísa Matos e dos pesquisadores do PPG de Ciências da Saúde da Universidade Federal de Alagoas (Ufal) para se aprofundarem no estudo das oscilações moleculares que ocorrem ao longo do dia no cérebro e sua relação com a epilepsia. . A estudiosa defendeu a sua tese de doutorado na Ufal no último mês de julho, e quando questionada acerca da função social de sua pesquisa ela citou que, uns dos objetivos é proporcionar um melhor tratamento aos pacientes e, consequentemente, elevar a sua qualidade de vida. O seu grupo de pesquisa acredita que intervenções controladas com o uso de fármacos, dieta, exercícios físicos, luz ou estímulos cognitivos, possam promover o alinhamento dos ritmos em diferentes regiões do cérebro de um paciente e isso pode ser utilizado para o tratamento das crises epilépticas. . Fonte: https://ufal.br/ufal/noticias/2019/8/estudo-realizado-na-ufal-padroniza-genes-responsaveis-pela-epilepsia . #Ciencia #saude #ppgcs #ufal #Brasil #epilepsia #capes #cnpq #fapeal #cientistas #cienciasdasaude #epileptic #epilepsy #healthy #fazemosciencia

710
1 day ago

Hi guys! I just wanted to share this awesome app coming out with you all! @MakingAuthenticFriendships is all about connecting young adults with special needs together to make friends with similar diagnoses and interests. When I made this page, that's all I wanted. I wanted friends who knew what I was going through. It makes me so happy to see something being made to solve this issue. I will be joining! Just to add, this is in no way an ad or sponsored post. I found this on my personal page and thought it was awesome! - - - - - #awaywithepilepsy #epilepsy #epilepsyawareness #epileptic #epilepsysucks #seizuressuck #seizures #purpleforepilepsy #purpleformegan #epilepsyadvocate #teenadvocate #epilepsyblogger #invisibleillness #invisibledisability #chronicillness #spoonie

360
1 day ago

I had a very strange brain day today... Most days I feel quite dizzy and ‘tipsy’ is the best way I can explain it but today I felt full blown drunk 🥴 I get very anxious with days like these, especially when I get heart palpitations and headaches because I worry a seizure is coming, however, I have absolutely no clue if I have any form of aura or symptom I’m about to have a seizure... Any one else have no auras? And does anyone else get that ‘drunk’ feeling? . . . . . #epilepsy #epilepsyawareness #epileptic #epilepsywarrior #epilepsysupport #epilepsyfighter #seizures #seizuredisorder #seizurestrong #aura #chronicillness #chronicillnessawareness #chronicillnesswarrior #mybrainsucks

3614
1 day ago

We are so proud to preview this book which has been in the works for almost 3 years, much of it created on-site at the Epilepsy Awareness and Education Expos in 2017 and 2018. This beautiful, rich color, hardback book contains so many pages of personal stories as told by the patients, family members, and caregivers. Each story features amazing, introspective photos which compliment and tell the story as well as the written words. Please purchase a PRE-SALE copy to help with ongoing support of our cause.⁠ Thank you to everyone that participated in the amazing project and those that made it come to life 💜⁠ ⁠ #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney

240
2 days ago

This little cutie is Gracie-Mae who is loving wearing her new Brio Wrist Watch Epilepsy Sensor. In fact, she loves it so much that she cries when it's taken off! And within the first 12 hours, it alerted Gracie-Mae's Mum, Aimee, to four seizures. (Taken from Epilepsy Lifestyle Facebook page) ⁠ ⁠ Thanks for sharing your story with us @gracie_mae_2015 ⁠ ⁠ ⁠ #epilepsy #epilepsyawareness #epilepsywarrior #cbd #seizure #awareness #seizurefree #epileptic #supportepilepsy #epilepsyeducation #purplepower #epilepsymatters #fightepilepsy #brio #myepilepsy #epilepsyalarms

191
2 days ago

Can we be hard on the people that show lack of tolerance or do not want to understand Epilepsy? Those who are healthy, fear sickness and we all fear the unknown! Can this fear turn into hate sometimes? I believe I can. Those that live with Epilepsy and other chronic illnesses do not fear it and sometimes embrace their struggles. Is this how you (a person with Epilepsy) have become an empath? Tell me if you are! #stagesofepilepsy #seizetheday #epilepsy #1in26 #epilepsyawareness #curestigma #seizures #seizuressuck #epilepsysucks #epilepsia #epilepsyadvocate #endepilepsy #ictus #epilepsywarrior #epilepsywarriors #epilepsie #chronicillnessawareness #stopstigma #stigma #chronicillness #invisibleillnessawareness #epileptic

250
2 days ago

Old school Bangers! 😜 👌👀 Got to listen to some Ntm too 🔊 @mtfupofficial I had already been training for about 4 years by this stage and the scary thing is that the footage is almost 10 years old 😳 #parkourlife #jump #ntm #dontstop #motivation #work #training #life #befree #fitness #fitnessmotivation #freerunning #nevergiveup #epilepsyawareness #epileptic #precision #goals #cbd #climbing #legday #vintage #lens #oldschool #classic #style #mtfup #instagood #instagreat #epilepsy #throwback

250
2 days ago

This picture was taken within an hour of me having a tonic clonic seizure 3 years ago after being 20 years fit free. I am sat in the hospital messaging my husband telling him I have passed out at work and hit my head on the sink in the toilet. The truth is I was in denial in this photo. I believe that I had just fainted. It was the hottest day of the year and I was under a lot of pressure, with writing up my PhD thesis and running my own business. The wagon had arrived at work to pick up the latest load for bottling and I was alone sorting it all due to covering holidays. An aura had started, so i did my normal thing of going to the toilet to be alone (silly thing to do I know) Luckly I had gone into the toilet in the shop next door at Growell and it was the boys who found me on the floor of the toilet covered in blood, dazed and confused. Who I am eternally grateful for. Now that is a good sized tennis ball lump on my head, which could have been prevented had I not been in denial and had spoken to people about my condition. I took another 2 years for me to fully come out denial, but now I am here, I see that it is my mission to help other to not be afraid to talk about being epileptic and know what your triggers are. Thanks to people like Chelsea layland and caz sharp that I faced my demons and came out of denial. The wonderful work they are doing as part of separating the strains has also helped me talk about cannabis as a treatment , which I have always know about, but never dared to say due to the law. Times are changing and we all are too. Prof. David Nutt said at the conference this weekend, that the best thing we can do is raise awareness and talk about it, cannabis is not a silver bullet, but it stop me ending up looking like this photo! This is not a photo many have seen, but I wanted to share it to raise awareness of what can happen if people have fits in the wrong place. As the second image says, I am not looking to be the victim, I just want to help others to feel brave enough to face their denial. We are not monsters we are WARRIORs #nationalepilepsyweek #seizuresavvey #SeizureFirstAid #seizures #seizurefree #seizure #tonicclonic

11337
2 days ago

I feel this way. I’m waiting for my time to win. In the meantime, I continue to live the best way I can. Thank you to all my Family and friends who help.

266
2 days ago

Rodeado de agua pero él con la vista fija en la pelota. Hemos descubierto que el estímulo de la pelota gana a su instinto natatorio, así que ahora es más fácil sacarle del agua cuando nos vamos a casa 💦💦 . . . #bordercollie #bordercollielove #bordercollielife #bordercollie4ever #bordercollieworld #ilovemydog #I_love_bordercollie #instsdog #bordercollieofig #bordercollieofinsta #happydog #epilepticdog #epileptic #epilepticdogofinstagram #adopteddog #adoptanocompres #cubelles #playacubelles

421
2 days ago

I used to play so many more games, but I pretty much only play #SummonersWar now. I actually figured out how to use it as part of my therapy - really! . First off, I used it to help control my anxiety a bit more. Some things are beyond your control and you can't do anything about them other than deal with them and/or be stressed, so just rolling with the punches and dealing is so much better. I force myself to stop playing for a while once I detect any bouts of anxiety or anger over a crash, glitch, lost match, bad pull, whatever and remind myself, "it is JUST a game." Life isn't a game (even if it kind of is) but you still have glitches, crashes, bad luck... It happens. You can't change it unless you know the secrets of reprogramming the universe/environment. Accept and move on. . Next, I use it to test my brain. If I'm having issues calculating even simple math when doing stats, I know I need to take care because a seizure is on its way (or already happened). To combat any issues with flickering lights, I try to only play on the iPad with the screen dimmed at least a bit. Plus, I've learned the timing of a good chunk of the effect animations and lighting changes during attacks and summons, closing my eyes or looking away so nothing is triggered. I can't always control lighting and displays in life, but I can learn patterns/colors/frequencies that bug me most and how to protect from them over time. . I was going to write more about how I use the game to help deal with my health woes but I realized I'm rather dehydrated and should attend to that now. Water monsters at least are good reminders, hah! Oh, yes, this finally popped the other day and I had such a hard time choosing... Ultimately went dragon and very happy with my choice. (Choices you can't go back on and have to make in a split second! Being okay with it after the fact! Another issue this can help me with when my psyche starts to get tangled up in its own mess.) . Anyway... . PS this iPad is old and I managed to crack it last year but it is still going strong. Very nice! . #RandomThoughts #Nerd #Gaming #App #Strategy #Life #Epileptic #PTSD #SplendidBlessingOfSummon #Summoning #Monsters #Game #iPad

180
2 days ago

Guess what guys?!? I can drive again 😁. A year is a long time of not driving. After my #seizures September 1st last year, I was told I had to be seizure free for three months. I figured I would be driving again by January. Well, that didn't happen. And each month that rolled around, I kind of got a little frustrated. My not being able to drive was so annoying. I couldn't go anywhere on my own that I couldn't walk or bike ride. Even walking or bike riding was limited at first because of the fear of having seizures. Today I got my license reinstated. Unfortunately, I didn't realize I also had to get a new photo. And pay a 55 dollar fee Let's just say my old photo was much, much better. My new photo looks like it belongs in a most wanted poster. I didn't know there was a photo involved! Oh well. Just another photo for the wall of Fame or shame, right? #license #driving #drive #driveacar #minivanlife #minivan #dmv #mvd #epilepsy #epilepsyawareness #epileptic

6420
2 days ago

In January of this year Jasmin and her #WarriorBaby Kinsley came to us, shortly after Kinsley had been diagnosed with #InfantileSpasms. We urgently connected them with Dr. John Millichap from @Luriechildrens , where Kinsley received the necessary medical attention no less than 5 hours later. This is how we all need to react to #IS - as a medical emergency that needs immediate treatment by a qualified and skilled Epileptologist. Several days ago, our Visionary & Founder Kristie Griess met with the family. This sweet #EpilepsyWarrior is #SeizureFree !! 🥳💜😄 What a blessing it is to do this work and experience first hand the results of quickly guiding families to a proper level of care, namely - a level 4 epilepsy center for diagnosis and treatment.

12211
2 days ago

#epilepsywarriors : Your companion is likely eligible to travel FOR FREE on any @viarailcanada train FOR 10 YEARS. . . @epilepsycanada distributes VIA Rail accessibility passes to Canadian residents with epilepsy. Passes are good for 10 years and allow a companion to travel with you, free of charge, as long you both are at least 12 years old. . . . For more details and to easily apply, visit the link in our bio. We’re here to help! Share this with your friends and family! . . . Who are you taking on your next trip? Tag them in the comments below!

647
2 days ago

Had an amazing workout with @soniarita.az and the squad, as usual! First time out and about alone in a while, too, but didn't fall over. Feeling good. A little shaky but alright! Decided to do a bit of shopping after, and lucked out on a sale at one of my favorite shops! Picked up this new piece, plus a few others (including for hubby), at @shoptumbleweedgypsy just now. So comfy! Ah... . Yes, I'm being a weirdo and posting while I stand in the shade on Subway St., too. Haven't decided if I feel like taking the bus home yet. 😅 Posting is good procrastination... . (Mati/Evil Eye bracelet from #BlackSheepImports next door.) . #RandomThoughts #Shopping #inBisbee #BeBisbee #DiscoverBisbee #ShopLocal #TumbleweedGypsy #Clothes #PartakeInStyle #Epileptic #Life #BisbeeAZ #Mati

301
3 days ago

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262
3 days ago

Please join us for the 8th Annual Art Exhibit & Fundraiser. Newport Beach 100 Civic Center Drive

41
3 days ago

386
3 days ago

161
3 days ago

Your unconditional love and support is what inspires us to assist children who suffer from seizures to get the higher level of care and life-saving diagnosis they need.⠀ .⠀ Say “Yes, please!” to helping families through the financial hardships of diagnosis and treatment of epilepsy.⠀ Donate Here: http://Bit.ly/DonateToMickiesMiracles .⠀ Help us continue the conversation about #PediatricEpilepsy. #MickiesMiracles

654
3 days ago

Epilepsy is sometimes defined by unexplained seizures by electrical instabilities in the brain. However, we probably see seizures described more often as electrical misfirings in the brain. When someone acquires Epilepsy due to TBI, infection, or some other factor, it’s possible that instabilities or an unstable condition puts a person at higher risk. Just like genetic influences on Epilepsy, it’s a topic still with a lot of mystery and noteworthy of discussion. #stagesofepilepsy #epilepsyfighter #epilepsy #electricalmisfiring #epilepsyawareness #epilepsystrength #seizures #seizuressuck #epilepsysucks #tbi #epilepsyadvocate #endepilepsy #ictus #epilepsywarrior #epilepsywarriors #seizetheday #neurologicaldisorder #epilepsyawareness 💜 #stigma #1in26 #invisibleillnessawareness #epileptic

352
3 days ago

💜

172
3 days ago

We are so proud to preview this book which has been in the works for almost 3 years, much of it created on-site at the Epilepsy Awareness and Education Expos in 2017 and 2018. This beautiful, rich color, hardback book contains so many pages of personal stories as told by the patients, family members, and caregivers. Each story features amazing, introspective photos which compliment and tell the story as well as the written words. Please purchase a PRE-SALE copy to help with ongoing support of our cause.⁠ Thank you to everyone that participated in the amazing project and those that made it come to life 💜⁠ ⁠ ⁠ #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney

330
4 days ago

I had a dream that a vet tech came to my house with Taub and said they were able to save him and cure his epilepsy. I think that’s taubs way of telling me he is running seizure free over the rainbow bridge 🌈🐾💜

878
4 days ago

To be honest, sometimes it bothers me I have epilepsy. It affects me emotionally,, and a little bit psychologically (?). But it also affects my sleep, because the more I relax and keep still,,the more I start to shake. Because of my epilepsy, it appears that I am "scared" to fall asleep. Only because I am terrified, I might have an epileptic moment in my sleep. But besides all that, most of the time, I don't feel bad at all. I might have my moments here and there, but honestly every has their good times, and bad times as well. I am just thankful I have a good heart, and I love myself. I hope the future is blessed, and bright. ☺️💕💕 #selfie #positive #positivity #epilepsy #epileptic #psychology #emotionally #goodheart

53
5 days ago

Yo les loulous 17/08/19 . Aujourd’hui c’était notre premier TAP avec Titi il était bien malgré les petites bêtises de nous deux. . Je lui est appris un début de valse puis marcher à côté de moi et s’arrête comme il faut (il savait déjà le faire) Je me placer mal ce qui a fait qu’il fessait un peut n’importe quoi mais ma coach ma expliquer comment bien se placer et c’est aller vite mieux Je suis super contente de notre premier TAP . Ensuite Célia ma prêter son poney que j’ai monté en cordelette (mon rêve 😍) il et juste génial se Lucky, un pur bonheur. . . Partenaires id . . #epilepsie #epilepsy #epileptic #poneybai #baiponi #horsebai #fluo #passionequitation #horseridingpassion #pasionequina #équitation #horseriding 🐴 #equitación #teamponey #ponyteam #merens #merenshorse #caballomerens #equitationclassique #équitationclassiquefrançaise #equitacionclases #poney #ponys #ponis #cordelette #travailapied #liberte #poneynoir #blackpony #poninegro

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