epilepsysucks Photos & Videos

17 minutes ago

With a heavy heart we stared phenobarbital for his seizures. Despite B-12 injections, he's still unable to maintain weight. Most of all the side effects from phenobarbital are horrendous. But here he is in a peaceful moment. After fighting sleep for much of the evening, it is a relief and blessing he can rest while he can. #seniordogsrock #adoptdontshop #epilepsysucks #sweetdreams

01
16 hours ago

I’m not referring to unconscious behaviors or any Freudian theory! This post is focused on the Ictal stage of the seizure! It’s after your Prodromal and Aura if you have one! It’s before the Postictal or an almost comatose sleep! Besides any injuries you might sustain, there might have been years of unpredictably losing consciousness for what others told you were falls, shaking, jerks, stares, strange behaviors, etc. It’s still a loss of time! It’s a universe where you are unconscious, but your mind wants to remember. It might even fill in the gaps for you with blurry visions or recalling an out of body experience seeing yourself having seizures. If you ever have flashbacks about a time when you were in a seizure, don’t resist it. Your mind might be putting things back together for you! It doesn’t matter if a witness says “it didn’t happen that way” because how you remember it is the most important way! I always say the way you remember matters and it matters the most! While living with Epilepsy, all memories need to be embraced. If you try to forget too often, your memory might not want to work anymore! #stagesofepilepsy #aura #epilepsy #epilepsyaware #timelapse #postictal #seizures #seizuressuck #epilepsysucks #epilepsysupport #epilepsyadvocate #endepilepsy #ictus #epilepsywarrior #epilepsywarriors #epileptic #neurology #amnesia #stigma #neuroplasticity #invisibleillnessawareness #unconscious #memory

80
16 hours ago

Got out early this morning to get 10 miles in. This week is a cut-back week with lower mileage and lower intensity. This will be my shortest long run from now until marathon day in EIGHT WEEKS!!! My goal is to raise $2,000 for the @epilepsyfdn , but I think that's low. It's Cam's birthday week this week, so let's blow that goal out of the water! Check out thr link in my bio to donate!

261
19 hours ago

⇢ Hur gör jag? Det är frågan jag ofta får av medmänniskor angående hur de ska hantera Nelia om de av någon anledning skulle ställas inför ett anfall. Det svåra är att Nelia har flera olika anfallsformer och beroende på vilket anfall Nelia har, så ska man agera olika. Så hur hjälper man en medmänniska att känna sig trygg i agerandet kring Nelias epilepsi? Om Nelia får ett anfall ute på stan, och jag av någon overklig anledning inte skulle vara nära, så hur skulle man hantera situationen. Som medmänniska eller vän. Detta gäller inte bara Nelia, utan alla våra epileptiker runtomkring oss. Man ser inte på någon om den har epilepsi, precis som man inte kan se att någon är döv. Om det inte sticker ut någonstans eller att man har något i närheten som tydligt visar att det finns risk för epilepsianfall. Tänker att detta är extra viktigt nu när Nelias epilepsi blivit värre och sämre. Vilket vi fick bekräftat från Nelias senaste EEG. Jag ska sammanfatta vad som är klokt att göra om man ställs inför en sådan situation. Men med ett eget inlägg som enbart har fokus på just agerandet kring Nelias epilepsi. #thisisepilepsy #epilepsy #epilepsi #epilepsywarrior #epilepsyfighter #epilepsyfighters #epilepsysucks #epilepsysupport #fuckepilepsy #strongerthanepilepsy

50
21 hours ago

💕 Daily Inspiration and Motivation 💕 Tag your friends ❤️ 🔴👕 If you want t-shirt,hoodie, sweater, tank, phone case or mug for Epilepsy awareness , please check the link in our bio (profile) —> @epilepsy.fighter.a 🎁 Perfect gift for your family members and friends Follow me to see more photos and videos 💕💕 Thank you so much ❤️ . . . #epilepsy #epilepsyawareness #epilepsywarrior #epilepsysucks #epilepsyfighter #epilepsysupport #epilepsylife #epilepsymom #epiepsyshirts #epilepsypositivity #epilepsyawarenessmonth #epilepsystrong #epilepsyday

180
1 day ago

This campaign has been launched to raise Epilepsy Awareness of our community. 👕 If you want this Shirt .Please check on the link in my bio (profile)➡ @epilepsyfighter.a 👕 Printed in the USA 👕 Worldwide shipping 📦 🌍 * 💯 100% Satisfaction Guaranteed! Click on the link in my bio (profile) to see the price,color,model and the sizes👍 🎁Perfect #gift for your family members and friends 👥 ⤵ Double tap & tag your friend Below! 💖 . . . #epilepsy #epilepsyawareness #epilepsywarrior #epilepsysucks #epilepsyfighter #epilepsysupport #epilepsylife #epilepsymom #epiepsyshirts #epilepsypositivity #epilepsyawarenessmonth #epilepsystrong #epilepsyday

290
1 day ago

You're invited to join us, Sunday August 25 at 9pm EST., (712)432-3900 pin 889627 #. We'll discuss glutathione benefits in seizures Did you know...there are many different types of seizures and that about 1 in 26 people will develop epilepsy at some point during their lifetime? . Hop on our call and hear the benefits of glutathione in seizures. . . . #Epilepsy #epilepsyawareness #epilepsywarrior #epilepsyawarenessmonth #epilepsysucks #epilepsyfighter #epilepsysociety #epilepsyeducation #epilepsymom #epilepsyproblems #epilepsysupport #epilepsyfamily #epilepsyinmotion #epilepsysurgery #epilepsystrong #epilepsylife #epilepsyadvocate #epilepsyfoundation #epilepsystinks #epilepsyaware #epilepsyawarenes #epilepsyawarenessmatters #epilepsyaustralia #EpilepsyMonitoring #epilepsynow #EpilepsyPhotoChallenge #EpilepsySurvivors #epilepsysufferer #epilepsyjourney #EpilepsyAdvocates

30
1 day ago

For those who dont know how it feel's after a tonic clonic/grand mal seizure here is a bit a knowledge for you from experience. When your conciousness first comes back (if you lose it, for me It's better not to remember) It feel's like you just got off a spinning ride all day, slowly the nausea will set in for real and I usually end up vomiting. After you can actually think again because it feel's your brain has just been fried and puked your gut's out you realize your body feel's like you just ran a marathon, lifted weight's all day, got hit by a bus and then all your joint's crushed by a hammer. That's not including any other physical injuries caused by the seizure. Do you know there are now 12 different defined type's of seizure's? Do you know any of the symptom's? Start recognizing all kinds of seizure's because if you dont take action even the smallest one's can one day lead to terrible consequence's that nobody want's to see or hear about. #epilepsy #epilepsywarrior #epilepsyawareness #epilepsysucks #epilepsylife #epilepsysociety #seizures #seizure #sudep #epilepsywarriors #invisibleillness #invisibleillnessawareness #cannabisforepilepsy #awareness #recognize

213
1 day ago

‘Rouwen heeft geen handboek’. Heb jij die al eens gehoord als ‘rouwende’ onder ons? Of zit jij met je handen in het haar, want je wilt er voor iemand zijn die rouwt? Lees ff verder dan! Geen zin om alles te lezen. De laatste zin is allesomvattend, al zeg ik het zelf 🤔 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Want het klopt. Als de keiharde voorkant van een bus. De ene week ben ik best aardig. En binnen een seconde slaat mijn humeur om, en voel ik me net zo naar als een tiental vrouwen bij elkaar die tegelijk ongesteld zijn en ook nog eens honger hebben. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Ok. Dat handboek. Die bestaat dus niet. Maar er bestaat wel een beknopte handleiding voor de ‘om-rouwenden’ onder ons. Ben jij zo’n iemand? Ik deel ff wat tips: 👉🏼Als er een huilbui aankomt. Luister. En neem van mij aan: die stortvloed met woorden? Die komen wel. Luister... en beaam. 👉🏼Breng in de eerste weken eten langs en ga weg. Dúdelijke taal toch? 👉🏼Vraag - ja daar issie weer - hoe is het VANDAAG. Want het gaat over het algemeen KUT. Maar per dag beantwoorden is zoveel fijner. 👉🏼Als je een rouwende lachend / shoppend / stappend (liefst met alcohol in beide handen) aantreft: pick your moment (NIET NU!) Wil je wel laten weten dat je aan diegene denkt? Een knipoog of een snelle omhelzing is genoeg! We voelen dan je medeleven! 👉🏼Vertel hoe het met jou gaat! Zo fijn! 👉🏼Twijfel je of je (officieel) moet condoleren? Doen! We weten bijna elke geschudde hand nog. En het heeft ons zo goed gedaan! 👉🏼Verzwijg de ‘overledenen’ niet. Ik praat zo graag over Twan. En als ik niet wil praten dan merk je dat snel genoeg! Tip: bedenk alvast een nieuw onderwerp om ongemakkelijke stiltes te voorkomen’. De mijne, die ik vaak hoor: ‘hoe is het met Lily’? Werkt perfect! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Als vriend(in) / partner / familie van iemand die rouwt, wil je er graag zijn voor diegene. Maar hoe dan? Het is voor iedereen anders. Bovenstaand is mijn mini handleiding. Bij Arjen is het weer anders. Daarom, de laatste tip waardoor je er écht maatwerk van kan maken is: ⠀⠀⠀⠀⠀⠀⠀⠀⠀ “Hoe wil jij dat ik met je omga, nu je zo’n vreselijk verlies hebt geleden? Wat zijn jouw do’s and dont’s?” ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ✌🏼 drop the mic

29466
1 day ago

**LINK IN BIO!** Register TODAY as today is the last day to guarantee your t-shirt with the cost of admission for our 9/14/2019 “A Night at the Mouse Races” charity fundraiser. . Co-emcees Chris Kerber ( @kerbshockey 🏒) and Chris Hrabe ⚾️ of KMOX Sports are sure to be worth the price of admission alone, but add BBQ by award-winning 🥇 @dukesbbqshack , beverages from a plethora of local breweries, friends and family, and the riveting SUSPENSE of mice racing at a feverish pace down the track to take our 2019 crown, you’ll be sure to have a great time! . Want MORE??? The individual that names the evening’s champion winning mouse even wins "BIG"...get creative! . We can’t wait to see you there! . . . #LandonsLeague #CAMSAP1 #findacure #nonprofit #research #fundraiser #stlouisfundraiser #stlouis #KMOX #WashU #lissencephaly #smoothbrain #CP #cerebralpalsy #hypotonia #corticalvisionimpairment #epilepsy #epilepsysucks #seizurefreedom #supportmedicalresearch #rare #rarewarrior #specialneeds #specialneedsfamily #specialneedsjourney

90
1 day ago

💕 Daily Inspiration and Motivation 💕 Tag your friends ❤️ 🔴👕 If you want t-shirt,hoodie, sweater, tank, phone case or mug for Epilepsy awareness , please check the link in our bio (profile) —> @epilepsy.fighter.a 🎁 Perfect gift for your family members and friends Follow me to see more photos and videos 💕💕 Thank you so much ❤️ . . . #epilepsy #epilepsyawareness #epilepsywarrior #epilepsysucks #epilepsyfighter #epilepsysupport #epilepsylife #epilepsymom #epiepsyshirts #epilepsypositivity #epilepsyawarenessmonth #epilepsystrong #epilepsyday

401
2 days ago

Today was the last day of the study. I can’t say sitting in front of a screen for 5-6 hours a day was fun but knowing in the end that I could be changing someone’s life for the better made it worth it. I had 64 probes(wires for an eeg) on my head 1 one my nose and 1 on my leg. All to collect data. I wasn’t sure if I could share details until I today. Over a thousand epileptics have the RNS implant but not all qualified for this study. There was a lot of criteria that had to be met and luckily I met them. The objective of my implant is to attack my seizures before they happen by recognizing abnormal brain activity....They are now trying to find out if it could be used for other “disorders” that affect the brain like anxiety, fear, depression but most of all PTSD. I can’t share the details of tests that were ran but I was almost put in their shoes and it wasn’t pleasing. I hope that my study and findings can make a difference in more people on top of epileptics. The way @stanford.healthcare and @neuropace.rns have come together is incredible. I’ve been to hell and back with my condition and they both pieced everything back together to give me a better life. I do believe that it can and will help thousands of others! . . . . . #strongerwithstanford #strongerwithneuropace #epilepsy #epilepsysucks #depression #anxiety #ptsd #youwillnotfightalone #ihaveepilepsyepilepsydoesnthaveme #strongerthanepilepsy

363
2 days ago

Doubled up today since I have had a couple off days. I also drank my shake and 100+ ounces of water. Finally feel like I had a very good day! * Do you have 20-30 minutes you could give yourself to enjoy a workout from inside your home? If so ask me how to get started and there might even be a way to save some money! ____________________________________________ #metime #homeworkout #momlife #shaketime #recoverafterworkout #fruitpunchwins #momjuice #livinthelife #boymom #girlmom #fragilexfamily #epilepsysucks #wife #happy #goodmood #findtime #workouts #nutritionwin #100ozwater #letsgo #fire2inspire #schoolsinsession #sweatsesh #flexibility

80
2 days ago

Toby had an MRI yesterday and great news! The scan came back normal! 👏 Toby handled it like a champ. He’s so tough it took a dose of sedatives powerful enough to put down a buffalo. I’m grateful for a wife that is so loving and caring. She loves him tons! Now to keep pushing back against the seizures! #warrior #toughToby #epilepsysucks

525
2 days ago

This campaign has been launched to raise Epilepsy Awareness of our community. 👕 If you want this Shirt .Please check on the link in my bio (profile)➡ @epilepsyfighter.a 👕 Printed in the USA 👕 Worldwide shipping 📦 🌍 * 💯 100% Satisfaction Guaranteed! Click on the link in my bio (profile) to see the price,color,model and the sizes👍 🎁Perfect #gift for your family members and friends 👥 ⤵ Double tap & tag your friend Below! 💖 . . . #epilepsy #epilepsyawareness #epilepsywarrior #epilepsysucks #epilepsyfighter #epilepsysupport #epilepsylife #epilepsymom #epiepsyshirts #epilepsypositivity #epilepsyawarenessmonth #epilepsystrong #epilepsyday

262
2 days ago

H E R B alist•. So as you all know, to help my seizures I am currently looking into alternative methods/therapies. I have been inactive on here this week as I have had a minor setback.. I have introduced herbs into my regime. Now I have previously tried CBD oil but found this ineffective and therefore discontinued taking it. The most recent herb I have started is called ‘circuta’ or more commonly know as: Water Hemlock💧 Now this herb has been prescribed to me by a herbologist and we decided we would try for one month. However within the first few hours of taking this I started to feel so spaced out and slightly delirious. Therefore this was removed straight away. Plus a seizure at the beginning of the week made me super nervous that I don’t want to provoke another..! However we do have to try these things otherwise we will never know! What I’m finding with this journey is obviously my body isn’t going to agree with all alternative therapies just as it doesn’t agree with medications but I am excited to try even more and further develop my knowledge of alternative therapies and epilepsy! Hope you all have a lovely seizure free weekend! ♥️

164
2 days ago

I felt so good and slept so good last night😴🤗 Woke up energized & feel refreshed🤩 . . Iaso Instant Tea with Full Spectrum Hemp Extract - Popular benefits includes weight loss & management, boost of energy, IMPROVED SLEEP, of course a gentle cleansing of your intestines & internal organs . . Just some benefits of CBD improves heart health, anxiety, seizures, addictions, chronic pain, depression, epilepsy and SO MUCH MORE . . JUST GO GOOGLE BENEFITS OF CBD THEN CLICK LINK IN BIO & ORDER YOURS, thank me later Happy Thursday Let’s get it✌🏾♥️

152
2 days ago

💕 Daily Inspiration and Motivation 💕 Tag your friends ❤️ 🔴👕 If you want t-shirt,hoodie, sweater, tank, phone case or mug for Epilepsy awareness , please check the link in our bio (profile) —> @epilepsy.fighter.a 🎁 Perfect gift for your family members and friends Follow me to see more photos and videos 💕💕 Thank you so much ❤️ . . . #epilepsy #epilepsyawareness #epilepsywarrior #epilepsysucks #epilepsyfighter #epilepsysupport #epilepsylife #epilepsymom #epiepsyshirts #epilepsypositivity #epilepsyawarenessmonth #epilepsystrong #epilepsyday

221
3 days ago

Can’t I just catch a fucking break! Seizures, Art show, party and boom sick with seizures. He must be very sick because I don’t think he’s ever just had a seizure at 8 pm. They always start early morning unless he’s super sick! He went down in the bathroom. So, if you want me I’ll be on the couch with my guy tomorrow 😩 fuckity fuck fuck It’s funny, those are my feet in that sand! This quote runs DEEP. I may swear and stink but we all know i pull through and live this! I live this hard! I have to, I have no choice but to live this! Did you hear that, it’s a choice! If I can so can you! Let’s do it together! #hope #inspire #nevergiveup #art #seizuressuck #epilepsysucks #danecapoart #theycallmecrazy @kristalynnette

13512
3 days ago

Epilepsy tests you both mentally & physically. But you need to find a way to keep going 💜💪

16013
3 days ago

Sometimes epilepsy really sucks. Like when I have to wake up my daughter just minutes after she’s fallen asleep so that she can take her meds. But then I remember how grateful I am for meds that are WORKING and what a blessing it is that they’re controlling her seizures. ❤️ I sure love this girl! #epilepsysucks

344
3 days ago

Things are looking up. I’m not where I would love to be, but I’m far from where I was at my worst. Feeling so much better these past few months. Praying for continued healing. God is good. He was when I was at my worst, and he will be when I’m at my best. I pray each person struggling today would experience breakthrough on their journey with epilepsy. Bless you all ❤️ #epilepsyawareness #epilepsy #epilepsywarrior #purpleday #epilepsysucks #epilepsyfighter #epilepsyadvocate #seizures #epilepsylife

203
3 days ago

Hi guys! I just wanted to share this awesome app coming out with you all! @MakingAuthenticFriendships is all about connecting young adults with special needs together to make friends with similar diagnoses and interests. When I made this page, that's all I wanted. I wanted friends who knew what I was going through. It makes me so happy to see something being made to solve this issue. I will be joining! Just to add, this is in no way an ad or sponsored post. I found this on my personal page and thought it was awesome! - - - - - #awaywithepilepsy #epilepsy #epilepsyawareness #epileptic #epilepsysucks #seizuressuck #seizures #purpleforepilepsy #purpleformegan #epilepsyadvocate #teenadvocate #epilepsyblogger #invisibleillness #invisibledisability #chronicillness #spoonie

360
3 days ago

This is a series of bittersweet memories from today. Addy has been up for over 24 hours and that is a scary place for us. However, she did decide to bless us with a smile and some giggles we haven’t seen or heard in ages. To us they are the most beautiful smile and the most amazing laugh in the world, but we also tread lightly as it is almost always followed by chaos. It sucks. In the meantime, we will relish in the fact that we were given an absolute gift that is too precious not to share. Please say some prayers we get to keep the smiles and giggles for a while and the thunderstorm stays at bay. In the meantime, enjoy (because Brother wasn’t feeling it 😝) 💜 #scn8astrong #AddyStrong #AddysWarriors #raredisease #epilepsyawareness #epilepsysucks #hersmileradiates #beautiful #purejoy #loveher #brothersnotfeelingit #happiness

8811
3 days ago

It’s a Blue Dream kind of day....💙

312
3 days ago

Fears over the legality and quality of health supplements derived from cannabis plants are prompting the biggest manufacturers to introduce a “kitemark” guaranteeing standards. It will be the first time cannabis companies have attempted to become fully compliant with UK law and is a sign of Britain’s growing significance in the global cannabis market. @thetimes

432
3 days ago

Needed to see this and re-post it because for us living with epilepsy it’s a good reminder that we have such a tough condition to deal with, especially your young or seeing children/family members deal with it. But also for awareness that people must realise that epilepsy effects us every day even if we haven’t had a seizure. There’s so much to deal with with epilepsy. Physically being exhausted or in pain. Side effects from medications. And mentally being drained or struggling with other things 💜 #epilepsy #epilepsyawareness #epilepsywarrior #epilepsyfighter #epilepsysucks #epilepsysupport #livingwithepilepsy #medication #sideeffects

231
3 days ago

Wow, motorcycles how cool. Thank you!

271
3 days ago

Can we be hard on the people that show lack of tolerance or do not want to understand Epilepsy? Those who are healthy, fear sickness and we all fear the unknown! Can this fear turn into hate sometimes? I believe I can. Those that live with Epilepsy and other chronic illnesses do not fear it and sometimes embrace their struggles. Is this how you (a person with Epilepsy) have become an empath? Tell me if you are! #stagesofepilepsy #seizetheday #epilepsy #1in26 #epilepsyawareness #curestigma #seizures #seizuressuck #epilepsysucks #epilepsia #epilepsyadvocate #endepilepsy #ictus #epilepsywarrior #epilepsywarriors #epilepsie #chronicillnessawareness #stopstigma #stigma #chronicillness #invisibleillnessawareness #epileptic

250
3 weeks ago

Day 131 ___ 𝐁 𝐈 𝐎 𝐌 𝐄 𝐃 𝐈 𝐂 𝐈 𝐍 𝐄 🌿🍃🌱 There are three different types of epilepsy syndromes: . 🌿Juvenile Myoclonic Epilepsy – a generalized seizure disorder of unknown cause characterized by bilateral myoclonic jerks with consciousness is preserved . 🌱Lennox-Gastaut – presents with the triad of: multiple seizure types, typical EEG findings, and impaired cognitive functions . 🍃Mesial Temporal Lobes Epilepsy – most common seizure associated with focal seizures with dyscognitive features with typical clinical features such as aura of fear, olfactory or gustatory hallucinations, and visceral symptoms . . . . References Vargo, A. (2019). Seizure Disorders and Neoplasms Lecture. Biomedicine. Boucher Institute of Naturopathic Medicine

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