epilepsy Photos & Videos

51 seconds ago

Tonight Jaxson asked when soohia wont have a disability or will she always have one . We are teaching him she is perfect and pure as she is . That there is not more she could be other than who she is . He is 6 , I want to educate him and be honest with him but I don’t not form an opinion for him . His relationship and acceptance for her is the purest most unbiased and real relationship she has . She is just his sister . How have you had these tough conversations with your other children regarding your non typical child’s condition? #specialneedsfamily #specialneedssiblings #dup15q #toddler #siblings #motherhood #honestmotherhood #realtalk #autism #autistic #extra #extraordinary #theluckyfew #goshoutlove #complexkids #epilepsy #genetics #raregenes #rarechromosomedisorder #disability #abilitynotdisability #differentnotless #chromosomecutie

00
52 minutes ago

We went to the reptile show today! Initially we really struggled to see anything because of the height of the enclosures, and well people standing or deliberately pushing past us! I was ready to throw in the towel & go home when a very kind lady could see our struggle, walked through the impatient crowd, and got down to Haddie’s level with her beautiful boa. She took the time to explain what she was showing her, and for her to warm up to a new creature. She even eventually asked if Haddie would like to try to hold her little best friend. Haddie did gesture a strong YES! It made our day, and I’m so thankful for kind & patient individuals who take the time for my sweet girl! She definitely made our experience much better 🐍

547
54 minutes ago

You will get there when you are meant to get there and not moment sooner. So run, relax, breathe, and be patient. 🖤 This year has been filled with epic personal setbacks with illness and grief making me take time off from my half marathon training. However, the lesson in it all is that if you keep going you will get there. The "there" might not be what you originally wanted, but it will be what you need at the moment. 🖤 Everything is a lesson, not a race. 🏃🏼‍♀️ So 48 days until the 10K at the Melbourne Marathon instead of the half. I would love to run the half next year, but you know what, I'll just have to see what life has planned. I never saw an epilepsy diagnosis coming and I feared every year would be the one where I lost my mom. Patience and a personal sort of faith has gotten me five months past both of those realities. 🧘🏼‍♀️ I don't know who needs this reminder... Maybe it is just for my future self, but patience with life and yourself is the most powerful tool you possess. And remember that patience isn't passive, it is being OK with whatever pace you run. 🤜🤛 . . . . . #motherrunner #running #10kmtraining #melbmara #melbournemarathon #epilepsy #epilepsyjourney #runningwithepilepsy #runninginspiration #LifeLessons #oldladywisdom #patience #wellness #sportmum #sportsmom #cricketmum #lacrossemom #cricketmom #lacrossemum #momlife #mumlife #lovelettertomylife

100
2 hours ago

Today was another day with more seizures. ⁣ ⁣ It was different this time. She started her day with seizures. It’s was a bad one. ⁣ ⁣ It seems like this ‘thief of security’ is forever changing.... getting worse, lasting longer, causing apnea sooner, spreading deeper and faster into her brain. ⁣ ⁣ They continue to hit her harder and harder. ⁣ ⁣ They have become so bad that I’ve begun to wonder if she’s going to fully recover from the next one. ⁣ ⁣ I wonder if she’s going to have one in the middle of the night that I’ll miss because I reluctantly made the mistake of falling asleep. ⁣ ⁣ I wonder if Danny and I will lose her before she has a chance to have surgery. ⁣ ⁣ It’s unsettling, distressing and unpleasant. ⁣ ⁣ SO WHAT DO WE DO??????⁣ ⁣ ❤️We smile. ⁣We smile through this because we have no choice. We smile because we are the two strongest girls I’ve ever known. ⁣ ⁣ ❤️We look at the good in the world. Through play and hugs and kisses and trips and homeschool we focus on the good things in our life. ⁣ ⁣ ❤️We focus on our loved ones who continue to lift us up and support us.⁣ ⁣ ❤️We stay on our schedule and stick to our routine because they bring our little family consistency, security and predictability........because this is safest thing and the best thing we can do for Emma. ⁣ ⁣ ❤️We try to give our child the most normal life possible despite the fact that she can’t safely participate in school or parties or gatherings. We do our best to safely make her happy. ⁣ ⁣ ❤️And finally we trust God. We try to believe that she’ll make it. We try to convince ourselves that she’ll be fine. We try to remain calm when one hits and attempt to remember to breathe knowing that it’s only a matter of time before another strikes. ⁣ ⁣ We continue to live as best as we can. ⁣ ⁣ #wearestrong #thisiswhatstronglookslike #fuckepilepsy

1919
2 hours ago

61
2 hours ago

11 months old. I can’t even believe it. You’re over 17lbs, doing tummy time for the first time ever and starting to hold the weight of your head more. You chew on your chubby little fingers to soothe your toothless gums. This is the loving look you show your sister and I everyday and we are so lucky to be able to see it. . You are living proof that miracles exist. . Happy 11 months of life 🦄💙

20019
3 hours ago

If you need more ways to help an epileptic person, you can always ask me questions or simply go on any social media and type in the hash tag #Epilepsy or #Epileptic #EpilepsySupport

120
3 hours ago

Invisible Illness Icons historic triptych altarpieces. Florence Nightingale, Jane Austen, Julius Ceasar, Alexander Graham Bell, Edgar Allan Poe, Albert Einstein. Can you match the person to the health issue they likely lived with? Epilepsy, PTSD, Depression, Autism Spectrum, Diabetes or Addison's Disease. Post your answers in the comments. #invisibleillnessicons #studiocprospect #okotoksartcouncil #portraits #encausticpainting #encaustic #paintingwithwax #altarpieces #florencenightingale #alexandergrahambell #edgarallenpoe #einstein #juliusceasar #janeausten #epilepsy #ptsd #autismspectrum #addisonsdisease #depression #autismspectrum #diabetes

80
3 hours ago

Today we went to a car show at the Elks Lodge where she is their Elks Lodge Baby. It was very warm so we stayed inside for most of it. Poor thing had seizures all day long. She had a vicious tonic clonic a little while ago and I thought I would post what most of these vicious seizures do to my baby. She is sleeping now. Just this one minute seizure makes my sweet girl this limp, this one minute seizure takes SO much out of her and then robs her hours of her day after. #blytheshope #blytheshopeteam #dravetsyndrome #dravetsyndromeawareness #dravetsyndromeunfiltered #dravetsyndromehasnofilter #epilepsy #epilepsyawareness #tonicclonic #hope #resilience #strength #warrior #dravetwarrior #dravetmamaofhope #dravetmama #ourlifewithdravet #spreadawareness

3511
4 hours ago

This week I’m talking about mental strength. Epilepsy is a condition that can often be unpredictable. One minute you might feel fine and the next you feel fatigued from the medication. One minute you feel fine and the next you feel a sudden rush of heat and light headed whilst experiencing a petit mal (mini seizure). This can often be frustrating as you feel you are making progress and then are suddenly back at square one. I have learnt to deal with this and often don’t feel too disheartened when the next pang of fatigue or the next petit mal comes. I just take a deep breath and move on staying positive. However sometimes you do feel upset, frustrated and disheartened and just need someone to tell you it’s going to pass and you’ll be ok. I think it is your support network who really get you through the most testing moments and it is important to celebrate them. Big shout out to @benjharrold and @lornamfrancis for always being there for me and telling me I will be ok 😘😁👍🏻😍. There are plenty of other people I can name too, but the list would be massive. Any special shout outs people want to make to their special supporters?! #fightingfits #epilepsy #supporters #shoutout

51
4 hours ago

Today the University of Guyana, Medical Students' Association, hosted their annual Health Fair. We the 4th years decided to raise awareness of Epilepsy. It was definitely a success! 👏💜 #GoPurple #Epilepsy #KeepCalmAndFightEpilepsy !

1010
4 hours ago

Has anyone seen the movie "Brain on fire"? It's so relatable! She doesn't have epilepsy, but her seizures and other symptoms, are all dismissed by doctors as "faking it" or "psychological". It's based on a true story. There's a book as well. Definitely recommend it. *Warning: does contain flashing images*. #epilepsy #brainonfire #movie #epileptic #seizures #chronicillness #hospital #asthma #neutropenia #lazyeye #doctors #depression #OCD #eatingdisorder #boweldisorder #amenorrhea #pain #disability #dontjudge

31
5 hours ago

#spooniesummer - Day 66 - Woop, had a big migraine but managed to clean the chicken stable.... happy chooks is happy me! Yeah....I'm kind of known as a crazy chicken lady. :) .... .. Find me on FB, SpoonieLife or you can find Narnia there at AddisonServiceDog #chronicallyill #chronicallyawesome #addison #addisondisease #EDS #EhlersDanlos #epilepsy #IBD #colitis #inflammatoryboweldisease #bonebreaker #osteopenia #fibromyalgia #POTS #prediabetes #osteogenesisimperfecta #butyoudontlooksick #awareness #invisibleillness #spoonie #disability

21
5 hours ago

Want to know something that really makes me angry? Hear it is.... I'm 4ft 5ish, not the slimmest girl in the world but i have lost a little but of weight and I'm now a 12/14. Went shopping today and do you think i could find one thing that's "in fashion" that doesn't make me look like a bloody blowing ball? No, absolutely nothing. Why is everything in this world made for 6ft women that are a size 6? They are modles for a living, that's not real life they are paid to live a life that means they look like that. In real life, as humans we have kids, health issues, jobs, we care for sick family we can't afford and don't have the time to buy healthy stuff and spend hours cooking or preparing inbetween real life. I'm not the slimmest but i do exercise, i don't eat the beat but i definitely don't eat the worse. It's life and when making clothing stop aiming for tall and thin and aim for avarage to short with curves and stuff. ○ #discoverunder1k #disabledbodiesmatte #letsdothis #spoonie #spooniesupport #spoonielife #mylife #fibrowarrior #fibromyalgia #primaryimmunedeficiency #epilepsy #spooniestuff #lovethis #meningitissurvivor #chronicillness #chromosomedisorder #missingchromosomes #disabilitybloggeruk #foodie #fatgirl #curvygirl #curvygirls #immunesystem #improudofmyself

101
5 hours ago

End the guesswork Everyone is talking about CBD 🌱but most still need educating as to which CBD is best as all CBD on the market is not the same. We've ended the guesswork for you to offer the purest, highest potency CBD 🌱on the planet for the lowest prices. Backed by a 60 day empty bottle guarantee! Check it out cbdfancier.com #naturalhealing , #holistic , #holistichealth , #painrelief , #anxiety , #Diabetes , #Crohnsdisease , #Killingcancer , #Epilepsy , #PTSD , #Acne , #Neurological , #Quitsmoking , #Gout , #Painrelief , #Glaucoma , #Opioiddependence , #Treatingalcoholabuse , #Insomnia , #Psoriasis , #Shingles , #Anorexia , #Asthma , #Fibromyalgia , #Rheumatoidarthritis , #Migraines , #Multiplesclerosis , #cbdnews ,

40
5 hours ago

Para entenderlo mejor.

91
5 hours ago

The MRI of my brain would make agood @deftones album cover.

234
6 hours ago

ohhhh heyyyyy! This little man is officially down one medication for his morning dose of meds 🙌🏻 goodbye keppra! Next week we will officially be off keppra completely and it feels soooooo good!!!! Thank you Jesus!!! Goodbye seizures! Goodbye pharmaceuticals! We won’t miss you 💜

964
6 hours ago

- mad luv 🍒 - - -i would appericate if you share this on your story please please 🥺🥺🥺🥺 - - app : videostar only ios - song: vhs logos - sony - time taken: 4hrs 8mins / please like this dont let it flop😑😔\ - hehe - 𝔱𝔞𝔤𝔰 #edgy #edgyaesthetic #edgyedit #gachalife #gachalifeoc #gachalifeedits #gachalifedit #gachalife2 #gachaverse #gacha #videostaredit #videostareditor #videostaredits #lunimegames #likeforlikes #like4likes #likeforfollow #anxieteagrprc1 #gachagacha #edgystyle #gachalife2 #aesthetic #aestheticedit #aestheticedits #epilepsy #epilepsyedgy #hentaihavencult #ireniarc2 #dropitcult ❣️ #unawakenedcltrc1

782
6 hours ago

I don’t think anyone who questions vaccines, thinks that vaccines act alone in contributing to children’s health problems. Most of us agree that our food, our water, our air, careless use of antibiotics, drugs, tooth fillings, and all the chemicals in our household & beauty products— altogether create a conglomeration of weak poisons packaged in pretty colors, that add up, accumulate, and are causing unquantifiable health problems simply because no one is looking. We can’t isolate one thing and say: that’s it. That’s the bad guy. Because we live and breathe them all. We don’t know how all these exposures connect inside our body, because no one dares to question, let alone study, this larger interconnected picture—the gestalt. But when you see someone you might label an “anti vaxxer” please understand they question and have sincere concerns regarding all forms of environmental toxins— whether it’s in our food, air, water or a syringe doesn’t really matter. #publichealth #vaccinedebate #ideas #pediatriccancer #juvenilediabetes #epilepsy #seizures #asthma #foodallergies #adhd #autism #autismawareness #nosb276 #antivaxmemes #provax #vaccineswork #vaccinateyourkids #vaccinations #gmofree #gmos #organic #holistic #medicine #environmentalist #environmentalism #savetheplanet #savethekids Image from @focusforhealth https://www.focusforhealth.org/chronic-illnesses-and-the-state-of-our-childrens-health/

22919
6 hours ago

Savanna not long turned 11,  She was diagnosed with epilepsy as a young child although with medicine it went away for a while,  sadly it came back more aggressive then the last Her seizures became medication resistant to the point she was having up to 30 seizures a day.  She was given the option  of brain surgery to fix the seizures.  She was scared, but after being accepted into her soccer team at school, one of her passions that she worked so hard for, she just wanted to be a normal kid The surgery that was low risk, no side effects made her condition worse which led to second surgery. After the second surgery her condition worsened even more,  Moo as her family calls her has been in a coma for 3 weeks, during this time she has battled Pneumonia, a staf infection and A collapsed lung. The medication has now been reduced to see if she will wake up,  she has made minor arm movements and is the kindest, funniest, bravest kid I know so there is no doubt she can do it. Once that happens she will commence occupational therapy, speech therapy,  A rehabilitation specialist and dietitian specialist as well as around the clock care. Savanna has a 14 year old sister and a 9 year old brother,  who are missing her as well as her mum and dad,  who are two of the kindest, generous people I've ever met and would give you the shirt off their backs. Any help to release the pressure so they can just focus on mending their little girl would be massively appreciated, every $1 counts, even if you can just share for awareness please, and bless you all ♥ #epilepsyawareness #epilepsywarrior #epilepsy #neurosurgery #littlefighter #instadaily #awarness #godbless

21
6 hours ago

#winter #perisher #snowball “There is more to a boy than what his mother sees. There is more to a boy then what his father dreams. Inside every boy lies a heart that beats. And sometimes it screams, refusing to take defeat. And sometimes his father's dreams aren't big enough, and sometimes his mother's vision isn't long enough. And sometimes the boy has to dream his own dreams and break through the clouds with his own sunbeams.” - Ben Behunin

121
6 hours ago

#skiing #perisher #myboy “Let your boys test their wings. They may not be eagles, but that doesn't mean they shouldn't soar free.” - C.J. Milbrandt

131
7 hours ago

Most people that have known me in the past few years would have no idea, but I had a seizure disorder that used to control my life. They started early in my teenage years and would happen at the worst times: auditions, performances, rehearsals... . I was afraid of large crowds in case I had one. I was afraid of performing because I wouldn’t want to ruin the show if I was going to have one. I was deathly afraid of being stuck on an airplane... . Today marks 7 years since my last seizure. I’ve been off seizure meds for 6 years and I can honestly say I owe it all to self care: exercise, getting lots of sleep, avoiding eating junk and working on my overall anxiety. My neurologist said last week that I’m not in the clear, but that it seems like I’ve found the right way to live with it, instead of living in fear of it. . Don’t ever let something you can’t control make you afraid of living your life. . . . . . . #epilepsy #epilepsyawareness

1553
7 hours ago

eTrikes are a great option for people with developmental, physical and behavioral disabilities! 1. Three wheels for balance 2. No drivers license, registration or insurance needed to operate 3. GPS equipped for location tracking 4. Safety features including horn, turn signals and lights 5. Can be ridden on sidewalks or bike trails 6. Easy to operate 7. Sense of freedom 8. Inclusion #specialneeds #downsyndrome #autism #cerebralpalsy #dyslexia #epilepsy #musculardystrophy #multiplesclerosis #add #bipolar #developmentaldisabilities #behavioralhealth #physicaldisabilities #inclusion #equality #freedom #veteran #mentalhealth #physicalhealth #sunshine #outdoors #nature #bikeride #trikeride #etrike #ebike #electrictricycle #electricbicycle #sonoma #stpete

101
7 hours ago

Last week, two of our staff members took a trip down to Los Angeles for the Mental Health First Aid Conference where they were trained to be Mental Health First Aiders! ---> The class teaches people in various fields to understand, identify and respond to someone experiencing a mental health or substance use issue. Mental Health First Aid doesn't teach you to be a therapist, but it does teach you how to provide help until appropriate professional resources are available. And that initial support can change everything. ---> Thank you so much to the @epilepsyfdn Wellness Institute! Thank you specifically to Catherine Brocker, who was an amazing instructor and to Hillary Dolloff for organizing this great conference. Finally, thank you to the @endepilepsygla for hosting such an informative event. ---> #epilepsy #epilepsyawareness #epilepsyfdnnorcal #epilepsynorcal #firstaid #mentalhealth #firstresponder

160
7 hours ago

Last night I woke up in more pain than I've had in so long. I finally went back to sleep with the misguided hope I would feel better in the morning. Unfortunately, the pain is even worse. I can hardly walk. Standing is a joke. I broke down. I'm using a cane. I feel like every pep talk I've given to every single person is a lie. I feel broken. Like all the progress I've made over the last year has been taken away from me in a matter of hours. This is my reminder that this is my normal. #MultipleSclerosis #Epilepsy , #TraumaticBrainInjury #TrigeminalNeuralgia #PostBrainSurgeryMigraines #fuckms #mssucksbutimstillfabulous #msproblems #tbisurvivor #brainsurgery #braintumor #braindamage #painkillersmakemyworldgoround #tbi #seizures #pain #mscansuckit #mynormal

82
7 hours ago

Q . What scares you about Epilepsy? A . SUDEP #epilepsy #SUDEP #educate Copy & paste this YouTube link to your internet browser https://youtu.be/eBkTWrwHue8

20
7 hours ago

Beach Day!! 🏖 ☀️🏄🏼‍♂️ Like (what felt like!) half of the UK we headed to the beach today! Jack had an awesome time and loved playing in the sand and the water! . Not that long ago Jack would have really struggled with a day like today as sensory wise, the beach is pretty full on! Gritty sand, the water, the wind and loads of people. He took it completely in his stride and was having an absolute blast, we were so proud of him. 😊 We had to keep a close eye on him as he kept taking off exploring! 😂🙈 . . . . #beach #beachday #inclusion #cerebralpalsy #epilepsy #sand #sandandsun #bankholiday #uk #england #pic

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