19 minutes ago
Just a note about my alopecia and what #alopecia is.
I've lived nearly my entire life with alopecia and have gotten many many comments, questions, and concerns about my disorder. Just to break it down Alopecia is an auto immune disease that attacks the fair follicles of the individual, causing baldness. In baby language: my body believes it's sick and attacks the follicles to "heal" myself. Don't be fooled when you see the word "disease." In no way is alopecia contagious. There isn't much study about the genetic side of it though. Many of those who have alopecia have family members with other auto immune disorders. That's the closest researchers have gotten. On a different note, not everyone who has alopecia is completely bald-
There are certain stages of alopecia and what they might look like.
#alopeciaareata : is hair loss that happens in patches or certain spots around the body. These can be from coin size to much larger.
#alopeciatotalis : is the complete hair loss of the scalp. The individual may still have their eyebrows, eyelashes, and body hair.
#alopeciauniversalis : is the complete hair loss of all body hair. This includes the eyebrows, eyelashes, and body hair.
When I was very young I was a wild girl with loads and loads of curly hair. It was just about as wild as I was. When I grew up a little my mother noticed some patches starting to show, and sooner or later we learned that I had alopecia. Those patches soon began to spread and I went from stage #areata to stage #totalis. Soon after I hit totalis I had entered the stage #universalis. I stayed in this stage for a few years then my hair started slowly growing back. My doctors had it be known that the hardest part for hair to grow bavk would be the back of my head, since this is usually wear it starts to come out from. Eventually I got to where I had nearly a full head of hair, except for the back. Unfortunately, it had fallen out again and this is where I am now.
I just want to inform those who are curious about my hairstyle or others. Those of you who do have alopecia please please remember you indeed are beautiful inside and out. Keep your head up. DM me with questions 😊 ILY