5 days ago
The photo is probably a little bit graphic and I apologise, I’ve had lots of questions about if Zac can eat fine now since the ng tube removal. Zac has 3ish oral bottles on a good day and 1 sometimes 2 pouches of purée food, he does have 1/2 feeds though his now new long term peg! He got this new one put in just last week, it’s taken a bit to get use to as the tube isn’t permanently connected like his previous button and the ng tube, but this one is so much more practical and subtle (not that we mind about people seeing) his doing well, we’ve been practicing standing and building those leg muscles up to walk one day, with the help of his orthotics (best thing ever) we are also working hard on communication as we have been exposed to Zac for so long we tend to know what he wants and him not having to tell us, we are working on asking the question waiting 5 seconds for his brain to register and process the information and this is working all new brain pathways and then responding- which he can do! 😀 slow and steady and we are kicking goals so proud always! ❤️❤️ #heartkid #tubie #feedingpeg #downsyndrome #goal #strong #fighter #superhero ❤️